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Old Wed Nov 27, 2013, 05:11 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Iron chelation

You know many patients can take Exjade - perhaps not the full dose - for years without adverse effects.

In Sweden Desferal that is given intavenously in a port during four days in connection with txs is the first drug. I have received 75 doses of Desferal in a small home pump without any complications or adverse effects.

I don't really think txs and Deferal make my quality of life lower but I have been tx dependent since dx 2006 except for almost 3 years 2010-2013 when I had Thalidomide.
Kind regards
Birgitta-A
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