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Old Fri Apr 6, 2018, 11:35 AM
John K John K is offline
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Join Date: Nov 2013
Location: Massachusetts
Posts: 3
Experience with Soliris (eculizumab)?

I've been dealing with low blood counts and MDS (low risk) for nearly five years -- mostly wait & watch, but with some use of Aranesp and more recently Promacta. Earlier this week, I was diagnosed with PNH in addition to the MDS. Next week I'll be discussing treatment options with my hematologist, including possibly taking Soliris (eculizumab).

For those of you who have used Soliris, did you experience any of the side effects? How did it affect the quality of your life?
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