|
Hi Kathie,
I am glad to read that your high PNH reading may have been from a erroneous lab test and that you are staying stable.
Are your monocytes lower now as well? The high MCV is still concerning to me. 6 months is a long time to wait to confirm that things are indeed trending stable or up.
If it were me, I'd would want to recheck my CBC in 3 months. The test is cheap (relatively), and seeing stable or rising counts would be affirming.
Please don't take this as being discouraging. I am just saying what I would do!
I hope you continue to do well!
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
|