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Hi Deb,
Thanks for the reply. Does this dose keep ferritin under control, while still getting transfusions?
Yes, fortunately the drug is better priced in India, else Novartis would have missed out on the large number of thalassemia patients who would not be able to afford a higher price. Still, for us it is expensive, as everything has to be managed privately - no govt subsidy or insurance.
Merry Xmas and best wishes for the New Year!!
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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