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Hi Birgitta-A,
I think doctor may have meant that 400 mg is too low a dose to expect an improvement. My mother is approx 43 kg, so starting dose had been put at 800 mg/day to be increased further. Maybe at this dose the iron chelation would be higher/faster. I don't know, just guessing.
If she does fine on 600 mg/day, it can be further increased after few weeks.
Thankyou for the link, I hope we too see some response and HGB increase over a period of time, the study was done after a year on exjade.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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