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Hi Joesmith,
Thanks for sharing your experience with Vaidyan. Since there are very limited options for treatment for MDS, like many others, I am also always on the lookout for any treatment that may give some benefit. And are willing to try experimental treatment also as long as there is no harm.
If you have any further details on the proposed length and type of treatment suggested by him, and if Vaidyan has been able to cure or improve any other MDS case, please do share the iformation. It will be of great help to me and maybe some others as well.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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