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Hi Birgitta-A,
Thanks for responding. I always look forward to your opinion.
I read another thread where you had mentioned neck pain, i hope you are well now and managing the pain well.
The ferritin drop is positive, this response has happened with a dose of 600 mg/day, I wonder if it is better to keep the drug at that dose and therefore maintain the creatinine levels than to increase the dose of the drug and put additional work for the kidneys. The worry is if the creatinine levels will not return to normal once it increases beyond the normal range. Even at 600 mg/day, the creatinine is showing a gradually increasing trend, but as the doctor had prescribed 800 mg/day, my mother has increased to this dose for last 2 weeks. We will see what the next blood draw shows.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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