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MDS
Hi Caregiver,
Very positive that you try to learn as much as possible about your husband's disease and do so much of the paperwork and phone calls at the same time as you make your meals super-healthful.
You know the first 4 years after my dx MDS Interm-1 I only received supportive therapy since I was afraid of the adverse effects of chemo. My EPO was high so I never reveived Aranesp or similar drugs.
Then I needed txs every week and accepted Thalidomide that has very positive effect during almost 3 years and now I am taking Revlimid with good result.
Hope your husband's disease will continue to low grade!
Kind regards
Birgitta-A
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