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Old Wed Jul 2, 2014, 06:49 PM
maggiemag maggiemag is offline
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Join Date: Sep 2012
Location: Cincinnati, OH - United States
Posts: 92
To the OP; based just on your numbers, I would say your hematologist is correct. I have a host of co-morbidities like CHF, hx of lung ca x 2 (both caught very early), inflammatory arthritis, etc., and most of the time I feel good. Yes, I get tired and occasionally significant fatigue, but I try to ignore and just keep going. I am always planning my next trip ! Attitude is very important; I try not to become my "disease". While my mds hasn't progressed rapidly, I think I am still considered low risk even with white and reds affected, I try to focus on thankfulness that I am still here; not on what might not ever happen! I was told in 2002 that I would need a heart transplant and yet they were wrong! ALso, like Bailie says, we are all different, and our diseases are all different and don't follow a book.
As far as lightheadedness, I do get momentary episodes but they are b/c my blood pressure is quite low, and not related to my anemia.
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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