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I sometimes have a wave of dizziness which makes me feel nauseous for a while afterwards. It always passes and is only occasional so I don't worry about it, esp since I also have quite low blood pressure (95/55 or lower sometimes).
Even though my average WCC drops every year (currently 1.2 and 0.4 neuts), as long as I feel well and am managing to avoid most infections, I'm content.
I want to assure you that it's possible to live a fairly normal life with lower risk MDS so try not to worry unless something serious goes wrong. Exercise is really important as is a healthy diet.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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