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j,
I have certainly felt your anxiety and a host of symptoms (even the tongue) and feel for you. Even the loss of a parent to the same disease, but certainly as the years have gone by most of it really is stress and anxiety. For me staying busy and living life is the best medicine. Listen to your doctors and relax (best you can). I continue to feel great, keep telling yourself that, it helps, if not maybe even a cure.
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Male 56, MDS 2008, pre SCT Hypocellular 5-30%, Normal Cytogenetics. WBC 500, anc 45, Blasts 15%, Platelets 45, HGB 7, RBCC 1.71, HCT 20.5, MCV 120. Became Transfusion dependent 3/2016. 5 cycles VIdaza started 3/14/16 which reduced Blast counts. . Marrow Transplant 9/1/16, Hereditary MDS/AML.
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