If you feel moved to contact your local US Representative to cosponser this legislation....yay....and if not, I figured it couldn't hurt to put it out there. I pasted a link below for more information. The link will also directly connect you to your local US Rep based on your zip code (after you type it in) so there's no leg work involved except for a couple of clicks 
http://www.votervoice.net/core.aspx?Screen=Alert&IssueID=15291&SessionID=$AID=921:UID=762039:SITEID=-1:VV_CULTURE=en-us:APP=GAC$
Your U.S. Representative Needs to Hear from You Today
Dear Friends,
Yesterday, Representative Doris O. Matsui (D-CA) formally introduced the "Bone Marrow Failure Disease Research and Treatment Act" (HR 6884.) This legislation would bring together the resources of several federal agencies to advance our understanding of and treatments for aplastic anemia, myelodysplastic syndromes, and PNH. You can read summaries of the bill and the legislation by visiting AA&MDSIF's Action Center for this legislation.
Thanks to your efforts, more than 300 Congressional offices are already aware of this legislation. In addition, Representative Matsui yesterday sent a letter to all of her colleagues in the U.S. House of Representatives asking them to cosponsor this bipartisan legislation.
The following Members of Congress have signed on as original cosponsors:
Chris Van Hollen (D-MD)
Sanford Bishop (D-GA)
John Doolittle (R-CA)
Robert Etheridge (D-NC)
Jim Ramstad (R-MN)
Pete Stark (D-CA)
JoAnn Emerson (R-MO)
Jason Altmire (D-PA)
Henry Waxman (D-CA)
Peter King (R-NY)
Jan Schakowsky (D-IL)
Madeleine Bordallo (D-Guam)
Diana DeGette (D-CO)
Jim McGovern (D-MA)
Jim McDermott (D-WA)
If your U.S. Representative is NOT on this list, please CONTACT HIM/HER TODAY and request that they cosponsor this important legislation! Don't forget, you can also contact their local constituent home office, as well as email their Washington, D.C. office. If your Representative IS on the list, be sure to call or email them to thank them for their support.
The timing is critical. Congress is expected to adjourn in a few short weeks, so our time to act is very limited. Go to AAMDS.org/action and urge action now. Forward this to your family and friends and ask them to join you in contacting their representative. We all know what an opportunity this is!
After you've contacted your representative, it's time to contact the media. Next week we will be sending you a message to send to your local media outlets. Get ready by visiting the websites for your local radio and television stations, daily and community papers and locate an email address of a local health or metro reporter or the news director. If you can't find the website, make a call and find out who should receive the information. Keep this information handy for our next call to action.
Together we can make this happen!
John Huber
Executive Director