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Every case is different....
Hi Stacerph,
I was treated with ATG/Cyclosporine/Prednisone/Neupogen in Dec 06. Before treatment, I was getting 2 units of red blood every 2 weeks, and 1 unit of platelets every week, and my bone marrow cellularity was pretty close to zero. My response was pretty good; one month later I did not need any more platelets, and by 3 months, I did not need PRBC any more. But... at six months, my counts started a downward trend, probably because we tapered the cyclo too quickly. Even then, my need for transfusions was 2 units of PRBC every 2 months, and I only got platelets if I was having a surgical procedure-- a vast improvement over before the treatment.
After watching and waiting for a year, I decided to get looked at by two AA specialists (Dr Paquette at UCLA and Dr Young at NIH). Dr P suggested a large dose of cyclosporine. I tried it, and while it took a few months, my counts gradually began to recover.
Have you gotten any second opinions?
Wishing you and your son well,
Bill
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Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
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