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Old Sat Dec 19, 2009, 12:47 PM
JEZ JEZ is offline
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Join Date: Apr 2009
Location: Birmingham, AL
Posts: 68
Quote:
Originally Posted by KimO View Post
My then 19 yo daughter was diagnosed with SAA at the end of 10/07, and had her ATG treatment the first week of 12/07. Not knowing that it was common after ATG, we felt as if we'd jumped from the frying pan into the fire as she suddenly needed platelets twice a week and RBC 1-2 times a week as well. However, she seemed to somewhat stabilize by the beginning of January to only needing blood products once a week. On around Jan. 17th she was borderline to needing a trx so we decided to hold off until the next appt. She was sent to the ER that weekend for throwing up blood (from an antibiotic) but we were excited to find that her platelets had increased to 48 even without the transfusion. January 10th, 2008 ended up being her last transfusion. Her counts are now all in the normal range and she finished her cyclosporine taper in 4/09.

Because there are so many that are still struggling I hesitate to post our good news but when Shauna was first diagnosed I needed every little bit of hope that this was something that could come out ok in the end. I still am very stressed on the days of CBCs and know that she could relapse at any time but we're thankful for how far God has taken her. We're also praying that her health allows her to finish her nursing degree so that she can be employed before she has to come off of our insurance.

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Kim O., mom to Shauna, dx 10/07, ATG 12/07, all counts normal and off cyclosporine
Please never hesitate to post good news.... it is actually called "hope."
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JEZ, 50s, diagnosed AA Dec 2006, ATG one time, serum sickness resolved / took cyclosporine (Neoral) with delayed response but now with good labs/ recent kidney toxicity, so off of cyclosporine now and trying generic Imuran
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