Hi Greg,
You are still young and will perhaps later have a SCT. As you know iron overload can increases the risk of infection.
http://ash.confex.com/ash/2011/webpr...aper41888.html
Ferriprox – an oral iron chelator – is now approved by FDA:
http://www.fda.gov/NewsEvents/Newsro.../ucm275814.htm
I was transfusion dependent from dx 2006 until 2010 and received 142 units of PRBCs. I started with Desferal from a home pump in connection with txs after 40 units of PRBCs. Three years after dx I tried Ferriprox too but my WBCs decreased so I changed to Exjade. Exjade decreased my WBCs and I could only take 500 mg/day instead of 1250 – the normal dose for me.
I had no adverse effects from Desferal and no adverse effects from the other drugs except the low WBCs.
Now I don’t take any iron chelator and my ferritin level is decreasing very slowly – latest value 979. I have hemolysis - I think that’s why the ferritin level still is so high.
Hope the wheatgrass will have a positive effect!
Kind regards
Birgitta-A