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Hi Birgitta!
I think it's just that infection risk in SCT that has tipped my NIH docs (and me) toward chelation. It's good to hear that you had no adverse effects. It seems like so many folks have nausea and other GI upsets with either Exjade or Desferal.
Dr. Dumitriu at NIH seems to feel Desferal is actually preferable to Exjade, because of the longer, more gradual infusion of the drug. But I'm not sure that I'd be good at actually complying with the process on a daily basis.
Ferriprox seems to have been approved in the US for thalassemia patients but not MDSers -- though I suppose a friendly doctor might prescribe it anyway, since it's available in the States.
I'll be talking with my local hematologist on Thursday about the options.
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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