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Old Fri Feb 3, 2012, 04:16 PM
usaf1125 usaf1125 is offline
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Join Date: Dec 2007
Location: Stoughton, MA
Posts: 66
Thumbs up Leo

I have been taking EXJADE once a day for over 8 years. My iron level has been up to 3000+. At my last infusion it was down to 2385 ng/ml, that was on 1/24/2012. I have had so far 282 units of blood. I don't know what "Pancylopenia" is, but I would push for the EXJADE. At your age a bone marrow operation is a must. I was to old when I was diagnosed for it. Being tired is a big part of it, I nap a lot. The only advice I can give is don't let it drive your life. I know my limits and live with them. I hope it all works out good for you. Best of luck, from the colonies.
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82 yr. old male. Diagnosed in 2003. Started Blood infusion 1/5/2004, average of 2 units every 2 weeks. Inject Procrit weekly 40,000 ML. I have had 344 units of PRC. E Mail leojean@comcast.net
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