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BerryP,
Hi I am also from the UK, I think we have spoken before on here. Have you been on the desferal for long? I have also started recently taking it, I have 4, 12 hr infusions a week via a balloon pump. I am interested to hear that you are so fatigued. I am completely knackered! I keep thinking that my hb has dropped but it is stable at 10.5. I didn't think this was a side effect of the desferal but I don't know what else I can put it down to. Have you spoken to your doc about this? I am under Proff Marsh at kings but am not seeing her for another couple of months.
Polly x
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