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John had Gi troubles from the desferral also. He would take one week off and then start up again. He never did a full dose and would infuse sub-Q 5 nights a week with two days off until his nausea got to be too much to handle. Then he would take a week off.
He found that warm, moist heat would help the bruises resolve quickly. He would get some really big ones. If they were too big, he would stay off the desferral until it resolved. Didn't want to risk infection.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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