Hi - My name is Gena. I developed Myelofibrosis in December 2008. I am transfusion dependent, every two weeks. I was on Revlimid (sp) for about 8 months and then switched to Thildimide and Prednisone for six months. I am now off of both medications as neither medication seemed to be slowing the progressions of the disorder. I am curious to know if there is anybody who has the same disorder and who would share some of the side effects, problems, medications, etc. with me. Because of the number of transfusions, my iron level is high and I take ExJade - not regularily, but often to help this iron overage. My white count is low, but I do take Procrit shots every week and Neulastia shots twice each month. Any information would be helpful to me. Thanks!!
