Hi Gena,
My dx was myelofibrosis during 16 months and I still belong to a very good support group for patients with myelofibrosis and two similar diseases. Try this link:
http://listserv.aol.com/archives/mpd-support-l.html
Kind regards
Birgitta-A
71 yo, dx myelofibrosis May 2006 - Sept 2007