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Old Fri Jul 22, 2016, 11:38 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Sarah,

I really think you should get a second opinion. You want to be confident in your diagnosis and treatment plan before trying too many new therapies. I had three opinions before beginning treatment.

The rise in WBC because of prednisone is not real. If you truly have AA, as soon as you stop the drug, it will go back down. Meanwhile prednisone can have some very serious side effects. So you don't want to take prednisone without knowing why. Don't be fooled by the false rise in your WBC.

EPO or Procrit will help your body produce RBCs if you are deficient in EPO. If it does work, it is not a cure, but a bandaid to get your RBC's up while your body recovers some other way. Hopefully, it will work for you!

It is good that your counts are still stable, but it would be better if you saw a rise in your hemoglobin or platelets (without Procrit/EPO). That is what you are looking for. Be patient, but use this time wisely. Things can change quickly so you want to be sure to have a plan in place if they do.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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