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Thanks for the encouragement Neil and Dan. I do not recall ever reading any studies in respect to PNH recurring after a successful transplant, but I do know of instances when the initial transplanted cell do not engraft and a 2nd infusion is done. I do know that I am at higher risk of MDS, (and other health issues) but I try not to obsess about what could happen, if that makes sense.
Happy Holidays to everyone!
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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