Thread: MDS Low Risk
View Single Post
  #22  
Old Wed Aug 1, 2018, 02:57 PM
cdseibold cdseibold is offline
Member
 
Join Date: Sep 2012
Location: Pinewood, MN
Posts: 43
Watch and wait

I was diagnosed as intermediate risk 9/12. Watch and wait can be boring which is good. At first I had frequent blood tests and now down to every three months. Blood values have not shown any trends except a slow downward drift of platelets.

Suddenly 3 weeks ago I suddenly was totally unable to function. Sleeping most of the day. A CBC revealed that my numbers had tumbled. After stopping Arimidex my values are recovering.

I was so worried that I had slipped into AML. But bone marrow test shows not a problem with AML. Thank goodness.

But it did get me thinking about the risk of AML and what the symptoms would be. I haven't found any information on the web other than some estimates of the number of MDS patients who develp AML/

Thoughts anyone?

Carol
__________________
Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
Reply With Quote