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Old Fri Dec 14, 2018, 10:52 AM
Sally C Sally C is offline
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Hi Arka,
My husband was the first "guinea pig" with MDS to try Promacta at The National Institutes of Health in Bethesda, Md. after no other treatments worked. He is sometimes thought to have overlapping MDS/AA. He is in his 7th year in remission after over 125 blood/platelet transfusions. NIH decided to try Promacta on MDS patients because of their success with AA patients taking the drug. For us it performed a miracle. I posted quite extensively before he went into remission. You may want to look back and read my posts. He was diagnosed in spring of 2009 and started Promacta in spring of 2011 and has needed no further MDS treatment since then. He stopped taking Promacta in 2012 once his platelets hit 100,000. At one point before Promacta his platelets were 4,000 and his neutrophils hit 0.0.
All the best,
Sally
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