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Wheatgrass Effect Didn't Last
I've been meaning to post for a long time but have only just gotten around to it. It was a difficult autumn with several infections and hospital stays. After an amazing initial reduction in John's ferritin after just weeks of wheatgrass use last summer, his level began to climb again through the fall. It was 4230 at the beginning of November and 10,762 by the end of the month. We were debating whether or not to try Exjade when John was admitted to the hospital with a serious staph infection. They sent him home after a week with IV antibiotics, but unfortunately, he suffered a heart attack and subsequent heart failure. He died on January 26. So sorry if I gave anyone false hope.
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Alice, wife of John, diagnosed MDS RAEB-1 5/10. Tried Vidaza, ON 01910.Na (at NIH), & Vidaza + Revlimid with no effect. Progressed to RAEB-2. Supportive care only from 9/2011 until death 1/26/12.
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