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Old Fri May 27, 2011, 07:59 PM
Lisa Z Lisa Z is offline
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Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
Lynn- I don't think that Ferritin levels will drop by themselves, if you've had red blood cell transfussions. But if you are in the 500 range, you don't need to start chelation. I started when I was over 1000, and even then my docs said I could wait. I didn't want to, I wanted to get back to normal counts.
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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