View Single Post
  #10  
Old Wed Jun 1, 2011, 04:36 PM
Hawaii Bill Hawaii Bill is offline
Member
 
Join Date: Jun 2008
Location: Waikele Hawaii
Posts: 100
Ferritin

Just wanted to say that my experience shows that the counts will drop on their own over time. At the time of my NIH visit, my ferritin count was 2200. I got my last RBC transfusion the following month.

I avoided iron-rich foods (cereals are really bad), and my ferritin is now down to 500-900 every month. It has been lower, but I eat more meat these days and do not restrict iron.
__________________
Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
Reply With Quote