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Old Thu Jun 2, 2011, 03:15 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
At last years patient family conference in Bethesda one of the doctors had a subgroup meeting on this. She said it would drop over a long time, but did not give any dietary tips, as I recall. At the time, my doctors had not shown any concern, but now they have mentioned it.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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