When to transfuse
Hi June,
I think I'm like most others in that my doc won't transfuse me with hgb above 8 or HCT above 24. I generally start feeling weak around that level and check in for a CBC. I can usually peg it pretty closely. I typically lose about 2 counts a week on my hct, so if I start at 32, I need tx in about a month.
I'm in a trial where I have to be monitored closely, so I have a BMB every 3 months. So far, after 7 months on Vidaza and Enbrel, I seem to be a non-responder, getting slowly worse. Excess blasts about 11% now with tri-lineage dysplasia, 5q- and 11q23-.
Still working full time, but starting to get tired of it, probably stop in 3-6 months.
Steve
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Steve Kessler,Age 71, Dx 3/2001, Currently AML converted from MDS, 5q-, 11q23, Negative response to Aranesp, Revlimid. Partial response to Vidaza in the past. On a study using ON1910.NA, counts too low to go to Stanford on schedule.
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