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9 Years Post Transplant!
This month marks my 9th year after a successful BMT for PNH. I have had a few issues every now and then, but nothing serious. For many years leading up to my diagnosis, I had debilitating fatigue and would regularly fall asleep during the day. (In addition to many of the other symptoms of PNH.) Some PNH experts I have met following my transplant disagreed w/ my PNH specialist regarding my course of treatment, but so far so good. I am not complaining! In respect to my anon donor, I have communicated w/ him but he has never replied to my emails.
Everyone, stay safe and Covid 19 free.
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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