LGL has some overlap with Aplastic Anemia and Pure Red Cell Aplasia. If you are on Facebook, there is a Group called "LGL Leukemia FOUNDATION Support Group".
Put that in the top line and you will be a member shortly thereafter. The site referred to by Solid Orange above, no longer takes new members.
FYI: 40% of LGL patients have RA, Lupus, Sjogrens, and other autoimmune diseases. So you are not alone. Many have had long times before LGL diagnosis.
Dallas, Texas - Age 78 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Last edited by triumphe64 : Thu Feb 12, 2015 at 07:32 PM.
Reason: Added information.