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Old Sat Feb 14, 2015, 11:33 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 445
Here is the LGL Leukemia Foundation Support Group on Facebook:

https://www.facebook.com/groups/LGLL...ONSupportGroup

Here is the same group on Twitter:

https://twitter.com/LGLLFoundation

I do not use twitter myself.

The home page for the Foundation is This http://lglleukemiafoundation.org/

If these don't work, send me a PM with your email info, and I will try to help you connect that way. I think that Facebook is the best way.
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Dallas, Texas - Age 78 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/

Last edited by triumphe64 : Sat Feb 14, 2015 at 11:41 PM. Reason: Add info.
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