Here is the LGL Leukemia Foundation Support Group on Facebook:
Here is the same group on Twitter:
I do not use twitter myself.
The home page for the Foundation is This http://lglleukemiafoundation.org/
If these don't work, send me a PM with your email info, and I will try to help you connect that way. I think that Facebook is the best way.
Dallas, Texas - Age 78 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Last edited by triumphe64 : Sat Feb 14, 2015 at 11:41 PM.
Reason: Add info.