I was diagnosed with T-cell LGL a couple of weeks ago after 44 years of an aplastic anemia diagnosis. I also have worsening liver failure due to hepatitis C cirrhosis (I got hep. C in a blood transfusion while having ATG in 1987).
I've been in touch with Dr. Loughran's office at the University of Virginia, but they don't really want to bother unless you can travel to VA. I do understand and respect that; I'm just too weak and too tired to travel. I'm about 800 miles from Charlottesville.
Margaret, SAA patient diagnosed 1972; ATG 1987; moderate AA for years; hep. C from transfusion 1987; now SAA is back.