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Old Thu Jul 13, 2017, 03:16 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 445
Quote:
Originally Posted by Margaret W View Post
Wow: they sure do keep that Facebook LGL leukemia page tightly closed. I'm no computer or Facebook dummy; I can usually figure things out, but so far, I haven't been able to get past all their blocks, etc.

I'm going to forget about it for the time being.
There are two of them. The administrator of the first one died and he was the only one, So there is nobody to approve you.

So a second was started. It is called "LGL Leukemia Support Group"
Try that. If you still have trouble, let me know. It can take a few hours for the administrator to notice.
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Dallas, Texas - Age 78 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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