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Old Sun Feb 4, 2018, 01:43 PM
Neil Cuadra Neil Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,518
Have you talked to your doctor about other chelators? Besides deferasirox (trade names Exjade and Jadenu) there's deferoxamine (trade name Desferal) and deferiprone (trade name Ferriprox). Those are U.S. trade names. I'm not sure if they are the same in Germany.

Some patients benefit by taking Exjade in half doses twice a day instead of once a day. Some patients even take a combination of chelation medications to get the right balance between effectiveness and side effects.

Desferal is administered by injection or infusion, so it's more trouble than taking a pill, but some patients don't have a better choice.

You can also ask your doctor whether it would help to follow recommendations for lifestyle habits (example) and diet adjustments (example). Note that this 2007 journal article disputes some of the diet recommendations -- see the section named "Hemochromatosis patients should be on a low-iron diet." But there's general agreement that you should avoid raw shellfish and avoid mistakenly taking any iron supplements.
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