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Old Fri Aug 24, 2018, 04:55 PM
derekvof derekvof is offline
Join Date: Aug 2018
Location: Carmel, IN
Posts: 2
During my two bone marrow transplants, I had over 100 blood and platelet transfusions. While I was in the hospital for 5 months for my second transplant, I was started on Exjade. Unfortunately, it really didn't do anything for me.

By the time, I successfully got out after my second transplant, my doctor monitored my Hgb. Once it was higher than 12, they started phlebotomy (therapeutic blood letting). They've been taking on average a pint of blood per month. Since I was released 15 months ago, my ferritin levels have dropped from over 4,000 to about 2,000. I'm still having blood taken regularly.

Not sure if that's an option in your recovery, but seems to be working for me.
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