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Hang in there Paul, been absent for awhile ...
from this forum.
My husband's relapse was discovered at his 4 year check up in October 2014. His WBC had dropped almost 3 points in May 2014 from February 2014, but it was still 'within normal range.' Looking back a blood test should have been done between May and October to make sure all was OK.
So always question, be a polite pain in the ass!
WBC in October was in the 2's and they called us back to do a BMB that day. Results showed he was 60% donor and a second transplant was ultimately recommended. Induction in Oct/Nov, admission on Christmas Eve and transplant began on New Year's Eve 2014, it was a fractionated transplant given over 3 days with a couple days in between.
Fast forward to today, things have been relatively smooth, although they did detect a FLT3 mutation this time so he has been on a low dose of Nexavar since March or April of 2015, he is due to discontinue this drug in December at the two year mark.
Second time around is difficult, but possible!
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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