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Old Tue Jan 9, 2018, 11:46 AM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Welcome to the forums. I'm sorry that you're gotten a diagnosis of PNH. It's important to learn about the disease and its treatment choices.

There is a good summary of PNH treatments at www.aamds.org/diseases/pnh/treatments.

You can read other information about the disease starting at www.aamds.org/diseases/pnh.

The PNH treatment drug called eculizumab is available in Japan (see press release) although I'm not sure if it's approved in Japan for treatment of PNH.
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