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Old Thu May 24, 2007, 11:00 AM
Cookie Cookie is offline
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Join Date: May 2007
Posts: 2
New to forum and dacogen

Hello. This is my first post. My husband was diagnosed with MDS in April 2004. A clinical trial of aranesp was available at the time, and he had good results with it. When trial was over, insurance finally gave approval for him to give himself the drug at home (after an unsuccessful series with Procrit). Then after about 6-8 months, its effectiveness gradually wore off. Since last September he has been receiving transfusions about every 2 weeks and HGB is seldom about 9.5 even after 2 units. Tried 4 months on Revlimid with only results being low WBC and platelets. He has just finished his first 5 day treatment of Dacogen and is in the 3 week 'rest' period. He has had no nasty side effects so far with no drop in WBC or platelets. His doctor says she wants to do 4-5 cycles if he tolerates it well. Next 5 day treatment begins June 11. I am glad to find Marrowforums and have already learned a great deal. Thanks. Will try to let you know how he progresses.
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