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Old Wed Sep 27, 2017, 11:31 AM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi akmegehee. I was transplanted for PNH almost 6 yrs ago. I also had a 10/10 MUD. My whole in hospital experience was not too bad, but my treatment process was prob. much less severe than most people experience from what I know. In respect to myself, I was actually looking forward to my transplant bcse I was so completely wiped out by that point. I had some ups and downs and I still have some lingering GVHD, but overall I am doing well. As long as you stay positive and trust in your medical staff, you should do well. There are many of us here who are glad to help!!

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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