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Thanks so much all. Feels good knowing we are not alone, can always count on the forums. Yes it was fast for sure for Lee - just a month and a little. The chemo wasn't working and his liver was showing damage after only 4 of the dacogen. His doctor had hoped to get at least 6 in but when the liver started and then his marrow stopped producing even red cells and platelets altogether, transfusions were averaging 3 - 5 of something every week to ten days, the bmt team decided not to wait....and here we are. he was diagnosed on June 29th, his age - 56 and health played a part to I think since all the testing they did on heart and lungs etc etc etc all came back good. But yes thankfully we don't have to wait any longer. The docs say that here it is usually at least a month to month and half - of course we had started looking at a bmt back in late July when they realized that Lee was moving to the high risk mds quickly.
Thanks again everyone, Thanks Neil for having this site - I will certainly keep updating. The thought of a cure for us after the bleak prognosis we were given just a few months ago, certainly makes us believe in miracles.
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