Quote:
Originally Posted by rich
Thanks
I do want the SCT but I don't like the odds. More or less a coin flip live or die within a year. They are searching for a unrelated donor now. 2 of my brothers were tested but they were not close enough.One was 2 of 6 the other was 4 of 6.
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Hi Rich,
I will respectfully issue a counter-argument to bailie.
I think your point warrants discussion with your doctor and maybe even a second opinion from another transplant specialist. Some people can get 2+ good years while on Vidaza. In 2+ years, there could be a major advancement in targeted gene therapies and/or transplant regimens. With a SCT, there are no guarantees.
Do you have any cytogenetic abnormalities? Have you been tested for the newer genetic mutations (like RUNX1) that point to the more immediate need to go to transplant? Knowing that could make your decision easier.
I hope you are one of the lucky ones on whichever path you choose!