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Donor search
Hi-
My son Grant was dx 12/4/98 with AA. His only sibling was not a match and there were no matches in the registry. Now, nearly 8 years later, a new donor search is underway. Thought you'd all be interested to hear about those results.
(By the way, we do not currently have plans for a BMT, but would like to have this donor info waiting in the wings)
The BMT doc was pretty confident (almost cocky) that they would be able to find a match even though I told them there was nothing in the registry in 1998
Well, they were pretty surprised when the search came back with no matches. They think there may be 8 possible 9/10 matches but they are now using words like "very challenging search" and "obscure markers". Interestingly enough, they asked if we had any Japanese heritage. We don't! Evidently Grant has some markers that statistically show up more often in people with Japanese ethnicity.
The search continues...
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