[JaneK]

Hi Vicki,
I was doing a web search today trying to figure out if fibromyalgia is common after bone marrow transplant and I came across your post. My transplant was two years ago for myelofibrosis secondary to polycythemia vera. What you describe is pretty much exactly what I experienced when I went off prednisone about a year ago. I felt like I was a hundred years old because everything hurt. Getting up and down and changing positions was not something I looked forward to due to the pain. Because of my persistant complaints of body pain and muscle pain along with my joint pain both my hematologist and my GP have floated the idea of fibromyalgia as a potential diagnosis. I did have some fairly long term relief of this chronic pain after my doctor put me on Wellbutrin last year but now it seems it has returned. Apparently this type of pain is common after bmt but I haven't read anything that has attributed it specifically to fibromyalgia. It seems to me that that is exactly what it is. I am seeing both of my doctors in the next couple of weeks so I intend to get to the bottom of this. 2 years post transplant and I'm thinking this is chronic pain of some sort. Hopefully they will be able to give me some sort of definitive diagnosis and pain management plan. I'll respond again if they think fibromyalgia is the likely culprit.