Quote:
Originally Posted by gramous
hello,
what kind of mds do you have? you have a high ferritin's level and i'm not sure that is from transfusions only... If I'm well remember you're been on tranfusion since june?
For energy, you can try coenzyme Q10 on the form ubiquinol (not ubiquinone)...
How high are your counts?
take care béné
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Thanks for your reply, I have Myelodysplastic Syndrome. I have Transfusions every 12 to 14 days. My red cell count goes down to 7.4, 8.1, then I have the transfusion. Im not sure what this is (coenzyme Q10 on the form ubiquinol) I am in New Zealand and havent heard of this before.
Regards Delwyn