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Old Wed Jun 1, 2011, 11:43 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Do get retested. I would probably get a at least 3 done, once per month to get a good handle on the FE.

Be sure to fast 12 hours before your next test. Don’t take any vitamin C either. Vitamin C makes the iron more available in the blood which is good when chelating.

Inflammation can cause Serum FE to rise and it appears you have some going on right now.
From the Iron Disorders Website: Although ferritin does act as an “iron storage” facility, another key function of ferritin is to contain iron withholding the metal from harmful invaders. As part of* the body’s natural defense system iron gets shuttled to ferritin. This function is activated and stepped up when inflammation is present in the body.


If your HGB is at least 10 - 12, you can do therapeutic phlebotomies. John does this and his HGB threshold is 10. He only gets 250ml removed every other month. This is an excellent alternative to Exjade.

Tea doesn't chelate iron. Instead, it reduced uptake in the gut from foods eaten. Curcumin is a good anti-inflammatory. Wheat grass appears to chelate the best. If you choose to do any of these, check to make sure there's no conflict with the Vidaza. Also, I would start with just one to see how you do with it.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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