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Heather,
Ronald's low counts sound very familiar to me because when my wife was first diagnosed with aplastic anemia she had HGB of 4.7, platelets of 14, and WBC of 3.3. That's very close to Ronald's lab results.
Two thing that have changed since my wife's treatment: One is the level of knowledge of the doctors, who learn more about bone marrow failure and its treatment every year. They may not have found a cure for PNH yet but they've made leaps and bounds in understand its biological mechanics. The other changes is the availability of drugs like Soliris that have revolutionized PNH treatment and made such a big difference to so many patients.
I look forward to hearing news of higher counts on your husband's next CBCs.
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