Thread: Need info
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Old Sun Aug 10, 2014, 01:33 AM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Hi Janet
If his hgb is around 10 they may not be concerned about transfusing. Everyone has a number that is specific to them but I dont know manny that transfuse at 10. Ex my husband normally would transfuse at 6 but that was actually lower then his drs were happy w. I think i see a lot of 7-8 hgb transfusion.
BUT that is a long time between blood test for your dad. Possibly his counts change or he is having a hard time w his new diagnoses and maybe both together is making him feel worse? What was his diagnoses he received if you don't mind.
If you can talk him into it it's never a bad idea to seek a second opionion listing all the symptoms you mentioned by a very experienced hematologist
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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