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Old Thu Oct 28, 2010, 02:30 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Greg,

Thanks for your supportive words. Not only did Al's regular oncologist miss the discrepancy in the lab reports but also the doctor at Emory. I pointed it out to both of them because (even though I didn't understand what all those crazy numbers meant), I knew that the numbers were different in the two lab reports. I cannot impress upon everyone enough that you have to absolutely be proactive and try to learn as much as you can about your disease and question any and every thing.
Al did not have any problem with his Vidaza today and he has one more treatment tomorrow. We have an appointment for next Wednesday afternoon for him to see the oncologist doctor again, in hopes that the redo of the bone marrow from the two labs will be back. So, needless to say, I am very anxious. I don't do "wait" very well.
Our doctor has a colleague at M. D. Anderson in Houston who he consults with, in addition to the Emory doctor we see. So hopefully we will get some answers and be able to make some informed decisions about further treatment options.
Trying to be a smiling and upbeat caregiver!
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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